Caring for children with severe disabilities requires a comprehensive and compassionate approach that addresses both their immediate needs and long-term well-being. Here are some common diagnoses that may fit into this category:

• Premature Babies: Small, fragile premature babies.
• Cerebral Palsy (CP): A group of disorders affecting a person’s ability to move and maintain balance and posture. Many of these children are in wheelchairs or assistive devices.
• Spina Bifida: A neural tube defect that affects the spine and can lead to physical and intellectual challenges.
• Muscular Dystrophy: A group of genetic diseases that cause progressive weakness and loss of muscle mass.
• Genetic Disorders (e.g., Down syndrome): Conditions caused by abnormalities in an individual’s DNA, which can affect physical and intellectual development.

Ensuring proper nutrition is fundamental, as these children may have specific dietary requirements due to their condition. Consulting with a dietitian can help develop a tailored nutrition plan that supports their growth and overall health.



Neurologists at Arkansas Children’s Hospital help with diagnosis and management of neurological problems while Physical Medicine and Rehabilitation (PM&R) doctors play a needed role in managing the physical aspects of these children’s health. They help design rehabilitation programs that enhance mobility and functionality while minimizing discomfort. Collaboration with specialized therapists is also essential. Speech Therapy (ST) can improve communication and swallowing skills, Occupational Therapy (OT) helps in developing daily living skills, and Physical Therapy (PT) focuses on improving movement and coordination. For very young children, Developmental Therapy (DT) assists in reaching developmental milestones through targeted activities and intervention.

Education is another important facet of care. An Individualized Education Program (IEP) is developed for each child within their school environment to ensure they receive the appropriate educational support tailored to their abilities and needs. This program is a collaborative effort designed to provide the best possible learning experience.

For families navigating comprehensive care plans, the Complex Care Clinic at Arkansas Children’s Hospital serves as a specialized resource. It aims to provide optimal family-centered care for children with medical complexities. The clinic ensures that each child and family receives necessary medical, nutritional, psychosocial, and developmental support while fostering partnerships with caregivers and community providers to help children reach their full potential. It offers expertise in managing various aspects of a child's disability, coordinating with specialists, and creating cohesive care plans which span across different medical specialties. Referrals to this clinic can enhance support by assembling a healthcare team that understands and efficiently manages the complex, interconnected challenges these children and families face.

By utilizing these resources and working closely with us at All For Kids, families can ensure that their child receives the multi-faceted care they need to thrive as much as possible.